What do working people wonder and worry about when their lives (and work) have just been disrupted by a new illness, injury, or a change in a chronic condition?
While creating a course to train doctors how to meet their patient’s needs, we realized we had to know what those needs were. It seemed obvious that patients would want to know what is wrong with them and what kind of medical care they need. But beyond those things, we came up with a list of predictable and totally reasonable issues:
How long am I going to be laid up (out of commission)?
How long do I have to take it easy?
When I can go back to doing my usual stuff?
In the meanwhile, what can I still do? What shouldn’t I do?
What can I do to speed my recovery?
If I can’t work, how will we pay our bills next month?
When will life be back to normal? …..if ever?
What does this mean about me? My future?
What is this going to do to my livelihood? What will this do to us financially?
Who will help me? Who can I trust? Who has my best interests at heart?
I often show this list when I am speaking to groups about how to improve outcomes for people with common health conditions like back pain. It always rings true with the audience. After one presentation, an influential executive (in a wheelchair with quadriplegia) told me that she had had all of those concerns immediately upon awakening after her accident.
Here’s my question: How are people getting these questions and concerns answered — when and by whom? The standard design of a medical visit (memorized by all physicians during our medical training) DOES NOT include a time for doing it. There is no sub-heading in our report format called: Patient Education, Instruction, and Guidance. If it is happening, it is spotty at best.
So if most doctors are not answering these questions, who is? Which of the other professionals who are responsible for responding to life & work disruption in working people IS going to address them? Unless one of these “experts” does so, the people will have to come up with their own answers. Yet how many are prepared to do that? They will come up with their own best guesses (which may be wacky) or may turn to their family, friends, co-worker, neighbor, union steward, or a lawyer for answers (who may or may not give them a bum steer).
What does this mean for you? If you are committed to better service (and/or want to avoid the trouble caused by bad advice), figure out a way to meet people’s totally reasonable needs for information and advice. If you are a treating clinician, consider making a revision to your standard visit protocol and report templates by adding that missing section: Patient Education, Instruction & Guidance.
Another simple idea for healthcare providers, employers or insurers is to create a standard operating procedure to mail out or hand out a brochure. The 60 Summits Project developed a fact sheet for employees whose health conditions have just started to disrupt their work — and a fact sheet for supervisors on how to manage the situation in the workplace.. Feel free to use these sheets as is, or remove the 60 Summits logo and revise them to suit yourself. But please do SOMETHING!